Patient Education Update- News, Views, and Resources in Health EducationFall 2006

CarePages Logo

Web Service Links Patients With Family And Friends

CarePages is a web service that has provided a way for family and friends to connect, stay informed, and provide support when a loved one is in the hospital. It all started when Eric and Sharon Langshur’s newborn son, Mathew, was hospitalized with a heart condition. They wanted to keep their circle of family and friends informed. So they created a website with updates on Mathew’s condition, photos, and a message board for well wishers.

In less time than it would take to make a five-minute phone call to that first concerned loved one, setting up the page is done.
Although they didn’t know it at the time, this was the first CarePage. The experience affected them so profoundly that they quit their day jobs and went on a mission to provide this very service to others. 50,000 CarePages and one million visitors later, one would have to conclude that they’re on to something.

According to Charlyn Slade, RNC, MSN, President of CarePages, “Hospitals find that not only does the service provide an emotional boost to patients and their families, but the hospital benefits as well.

“Since CarePages is accessed through and branded with the hospital’s own Web site, it provides an additional point of contact between the patient and the hospital. It also offers the entire hospital community a place to add links to provide visibility for other hospital services like community education programs.”

Secure, private and free

In order to offer CarePages to its patients, a hospital licenses the service for a fee based on the facility’s size. CarePages provides ongoing technical and marketing support, and bandwidth for the pages. There’s little ongoing staff time involved except to provide a brochure or briefly tell patients about the service. Best of all, the service is totally free to patients and their families.

One thing that makes this service unique is that every visitor to a page must register to gain access. They can only register if the manager (the patient themselves or a family member) invites them. The manager can screen visitors and see who has been on the page and how often.

 “Privacy is very important. Some of the other services like this are closer to blogs in that anyone can view the page but may need to register only if they want to post a message,” Slade explains.

Regarding privacy and HIPAA guidelines, a CarePage can make things a bit easier for staff who often field phone calls regarding questions about a patient’s condition. The CarePage can eliminate many of these calls and save valuable staff time in the process.

Creating a page in minutes

CarePages - Screen Shot
A sample home page from the University of Pennsylvania Health System. (click to see full size)

Setting up a web page sounds complicated and the last thing someone wants to do when they’re dealing with illness. But the process is one that requires no technical competence at all. The set-up is done by simply answering a series of fill in the blank or multiple-choice questions.

In less time than it would take to make a five-minute phone call to that first concerned loved one, it’s done. After that one can invite visitors, add photos, post updates on the patient’s condition, or see who has posted something on the message board.

Every time the manager updates the page, everyone on the mailing list is automatically notified via e-mail. This way family and friends know that they’ll be kept in the loop, and they don’t have to wonder if they’ve missed any important news.

Paying it forward

WebPages also offers a unique feature called CareCompliment. A simple form on the site gives anyone visiting a patient’s page an opportunity to offer recognition to a disserving hospital staff member. According to Slade, “It’s so easy for patients and family to follow through because it is right there for them. And staffs love it because the hospital gets these messages in real time.”

CarePages - Screen Shot
Mathew Langshur, the inspiration for CarePages, is now a happy and healthy third grader.

Another section, Profiles in Courage, allows new patients to see pages that others have previously done. Those pages are made available by patients who have gone through treatment and want to give something back by helping others see the possibilities.

The bottom line is that CarePages can provide genuine emotional support. A study with Children’s Healthcare of Atlanta concluded just that and will be presented at the National Association of Children’s Hospitals and Related Institutions Meeting this October in Boston. 300 Children’s staff members participated in the study and 77% indicated that CarePages positively affects the well being of patients and their families. 

To learn more, go to www.carepages.com.

Issue V: Fall 2006

  • On-Demand Remote ControlOn-Demand Video: Planning & Implementing the Install — Part 3
    The last in a three-part series about hospital on-demand systems covers all the crucial steps in implementing your system from pre-planning to launch to the months following the install.more…
  • Joe NoraOn Demand Interview with Joe Nora of SVI Healthcare
    The Vice-President of Healthcare Sales at SVI Healthcare, talks about current trends for on-demand technology in the hospital setting and the biggest challenges you face in getting your hospital to move ahead.more…
  • CarePages.comWeb Service Links Patients With Family & Friends
    Learn how a family illness launched a web service that has touched over one million people by providing a way for family and friends to connect, stay informed, and provide support when a loved one is in the hospital.more…
  • Getting Your Message Across: Patient Teaching, Part 4Getting Your Message Across: Patient Teaching, Part 4 by Maureen Habel, R.N., M.A.
    Part 4 in this accredited Nursing Spectrum series looks at ways to help nurses evaluate patient learning, document patient teaching, and avoiding nine common teaching mistakes.more…
  • PEM - Cluture Clues‘Culture Clues’ Help Staff Understand Diverse Patients
    Learn how the clinical staff at the University of Washington Medical Center in Seattle developed a simple and effective system to facilitate communication with patients from their diverse community and ultimately improve the quality of care.more…
  • PEM - Resource LibraryAttracting Consumers to Your Resource Center
    If you build it and they don’t come, what can you do? The Family Resource Center, a pediatric consumer health information library at St. Louis Children’s Hospital, shows how to take a proactive approach to get people in the door.more…
  • HealthClipsHealthClips™ to Deliver Video from Hospital to Home
    Technology has always been a driving force for how and where people experience patient education media. Now Milner-Fenwick plans to launch a new service that promises to radically change the rules and expectations for patient education.more…
  • In the NewsIn The News
    “For much of my 15 years of medical practice, I was a card-carrying member of the group of doctors who resent know-it-all patients…” begins one article in this new section linking readers to thought provoking online reading.more…
  • Online Outside ResourcesOnline Outside Resources
    This issue spotlights low or no cost materials from JCAHO, the National Eye Institute, the Office of Minority Health, and a manufacturer that can help you put on a successful diabetes event.more…
  • What's new at Milner-FenwickWhat's New at Milner-Fenwick
    We spotlight prize winners at the AADE Meeting in Los Angeles (maybe someone you know), new nutrition videos that support AHA guidelines, postpartum programs, and diabetes video and PowerPoint nutrition resources.more…