Patient Education Update- News, Views, and Resources in Health EducationSpring 2005

The AADE 7 Self-Care Behaviors™

Setting the Standards for Behavioral Measurement In Diabetes Self-Management Training

by Christopher Laxton, Executive Director, AADE

The American Association of Diabetes Educators (AADE) is the professional association representing diabetes educators and the field of diabetes education. AADE's vision is to be the leading authority in diabetes self-management training and in lifestyle management for the prevention of diabetes.

National Standards for DSMT: Structure (Organization, Target Population, Governance, Coordinator, Instructional Team, Staff Continuing Education, Curriculum), Process (Assess/Intervene/Evaluate, Documentation), and Outcome (CQI).  DSMT Outcomes Standards (AADE): #1. Behavior Change: The unique outcome measurement for DSMT. #2. AADE7 Seven Self-care Behaviors: To measure effectiveness of DSMT at individual and population levels. #3. Measurement Interval: Behaviors should be evaluated at baseline and at regular intervals. #4. Outcomes continuum: To demonstrate the link between DSMT and behavior change. #5. Individual & Aggregate Outcomes: To guide both patient care and services/CQI in the diabetes program.

To advance this vision, AADE has invested over seven years of resources to develop a framework of standards for behavioral measurement in diabetes self-management training (DSMT). This framework more accurately reflects the best practice of DSMT by measuring behavioral outcomes rather than solely focusing on completion of required content areas as specified in the National Standards for DSMT (See Figure 1 to the left).

The primary goal of diabetes education is to provide knowledge and skill training, as well as help individuals identify barriers, facilitate problem-solving and develop coping skills to achieve effective self-care management and behavior change. It is the position of AADE that all educators should measure both individual and aggregate AADE 7 Self-Care Behaviors™ at a minimum of pre- and post- intervention. Additional follow-up measurements are ideal, and should be applied as appropriate to the practice setting.

AADE 7 Self-Care Behaviors: Healthy eating, Being active, Monitoring, Taking medications, Problem solving, Healthy coping, and Reducing risks.

Through adoption of the AADE 7 Self-Care Behaviors™, (listed in Figure 2 on the right) educators are able to determine their effectiveness with individuals and populations, compare their performance with established benchmarks and measure and quantify the unique contribution that DSMT plays in the overall context of diabetes care. (Mulcahy, K., et al., 2003.)

AADE Outcomes Measurement Standards

In the September/October issue of The Diabetes Educator (TDE 29[5]) AADE published its Position Statement on Standards for Outcomes Measurement of Diabetes Self-Management Education. The Standards elaborate the five areas shown in Figure 1 above and listed below:

  1. Behavior change is the unique outcome measurement for diabetes self-management education.
  2. Seven diabetes self-care behavior measures determine the effectiveness of diabetes self-management education at individual, participant, and population levels (see Figure 2).
  3. Diabetes self-care behaviors should be evaluated at baseline and then at regular intervals after the education program.
  4. The continuum of outcomes, including learning, behavioral, clinical, and health status, should be assessed to demonstrate the interrelationship between DSME and behavior change in the care of individuals with diabetes.
  5. Individual patient outcomes are used to guide the intervention and improve care for that patient. Aggregate population outcomes are used to guide programmatic services and for continuous quality improvement activities for the DSME and the population it serves.
Health Care Outcomes Continuum: Immediate Outcomes (Learning, Knowledge, Skill Acquisition), Intermediate Outcomes (Behavior Change), Post-Intermediate Outcomes (Improved Clinical Indicators), and Long Term Outcomes (Improved Health Status).

The continuum of outcomes referred to in Standard 4 (above) is important because it acknowledges the full impact of diabetes education in the care of the person with diabetes, illustrated here in Figure 3, shown on the right.

The final standard refers to the necessity to gather data and measure outcomes for both the individual with diabetes and for an aggregate population. Aggregate data guide program development and quality improvement efforts at the diabetes program. The AADE 7™ framework supports this by describing a full-spectrum approach. This includes the AADE 7™ measurement methodology; tools and a data model that can be applied at a program and/or integrated into existing data platforms and EMR management systems; and the eventual development of a diabetes data repository that is expected to include a diabetes educator and program registry. This approach is pictured immediately below in Figure 4.

The AADE 7 Framework. Standardized DSMT Measurement, from bottom to top: AADE 7 Self-Care Behaviors (Conceptual framework), D-SMART, D-ET, SRF, Behavioral Goal Sheets (Measurement tools), Integrated Data Capture (EMRs, software, IT platforms), Reporting (Quality improvement, program recognition, and reimbursement), and National Registry (Benchmarking, public policy, research, and best practice).

In this day of evidence-based medicine, diabetes educators must gather the evidence to support their practices and modify their approaches in response to the evidence. Applying the AADE standards for outcomes measurement of DSMT will provide the educator with the tools to understand what is working and what is not. As the profession of diabetes education matures, we must establish our own core of knowledge about our practice. The 5 DSMT Outcomes Standards complement the foundation of the National Standards for DSMT to create a full circle of quality in the delivery of education and care to people with diabetes. It is only with the clear understanding and adoption of standards and core measures for DSMT outcomes measurement that the profession will progress to a level of maturity that establishes DSMT as an essential therapeutic intervention in the care of people with diabetes.

AADE gratefully acknowledges and thanks our many volunteers who have worked on this framework, the 80 diabetes programs that have prototyped these methods, the 1,500 diabetes patients that participated in the prototype tests, the AADE leadership and staff, and our IT vendor partners, for developing these standards, methods and tools to improve diabetes education, and to improve the lives of the millions of people with diabetes in the United States and around the world. We also acknowledge with much gratitude that the outcomes development work for the AADE 7™ has benefitted from the generous support of seven major corporations in the diabetes field, whose logos are pictured below.

AADE sponsors: BD, Bayer, Lilly, LifeScan and novo nordisk.
About the AADE

Logo of the American Association of Diabetes EducatorsThe American Association of Diabetes Educators is committed to improving the quality of diabetes care and education. They are a multi-disciplinary, professional membership organization dedicated to defining, preparing, and advocating for healthcare professionals in the specialty field of diabetes education and lifestyle management to prevent diabetes. The AADE is located at 100 West Monroe Street, Suite 400, Chicago, IL 60603. They can be reached at 800-832-6874 or on the web at diabeteseducator.org.

Issue II: Spring 2005